We just got a phone call that Make a Wish is having the house dropped off on TUESDAY!!! We were told we would have a weeks notice but that is not the case so we are seriously hurting for help this weekend. As of right now I have only 3 people who have offered to help. I am not above begging at this point! Many of the people who have offered to come and help on several occasions or with a certain project, have backed out or not returned to do the job they said they would. My father is usually great for projects like this but he is off serving our country in the middle east as we speak and will not be returning for several weeks. Here is a list of the projects we need to accomplish this weekend and if you can help PLEASE email me back or call us so I know how much help we truly do have. We will have food and drink for all of those willing to show up.
Finish cutting up tree branches
Put Fencing In/finish removing old fence
Level house area
Run electrical
put down weed deterrent tarp
cover area with crushed stone
Level play area for swingset
lay down weed deter tarp
take down old swingset
take down trampoline
These are litterally the basics of the project and I may be missing some. This is going to have to be a rain or shine kind of thing(as long as it is not pouring or lightning) at the very least for the playhouse area. After that there is a list for the patio/therapy garden/pond areas that will need work along with mulching all of the spaces. Hugh and I are going out this afternoon to tie up loose ends and grab anything we may need. Hugh will also be out there working tonight after we are back from the errand part of it all. I know it seems like a lot but really if we get some solid help it will not take as much as we think. Thanks in advance for your help!
Nicole and Hugh Garman
609-354-2947 cell
609-914-0185 home
skip to main |
skip to sidebar
Support For Loving Boys Fighting a Life Threatening Disease!
About Us
- Joshua and Michael Garman
- We are wonderful little boys with Mitochondrial Disease Complex I. Two loving parents and our brothers pray for us and love us every day!
Joshua's Health/Family Update Page
Company Sponshorship Links
Guestbook
My Story
Joshua was born in 2005 and developed normally until he was 4 months old, he was the perfect baby. In December, in his fathers arms, Joshua had his first seizure. We took him to the local hospital only to be sent home being told it was a childhood seizure and not to worry. The next day he had another one and we found ourselves spending 3 days at Cooper Hospital.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
The Morning After The Benefit
Benefit Night
No comments:
Post a Comment