We are in need of as many helping hands as we can get this weekend from 9-5 on both days. Our goal is to get a minimum of 6-8 people consistently on both days if possible. If you can only do an hour or two that is fine too. We were unable to get all the work we had hoped done this weekend. With an estimated delivery date of Joshua's playhouse from Make a Wish coming up in the next week, we really need all the help we can get. The township did give us the permit for the house without any cost to us, which was a huge blessing. THe other big blessing came whne Hugh went to pick up the swingset. A gentleman offered to put the set together for us at no cost after finding out what we were doing. We have to get both areas cleaned up and leveled ready for both sets to be placed. The fencing also has to be put up. There are tons of other projects that we will also need help with once we have accomplished these tasks listed.
I'm currently trying to find a person who does electrical that can run an electrical line to the play house so we can put air conditioning in it for Joshua. Any people handy with carpentry type work are also needed to finish the inside of the playhouse once it is here since Make a Wish could not do that. We are also still looking for good prices on supplies such as shrubs, perennials, mulch, soil, gravel, paving stones, and pond supplies. If you have any contacts in this area please let us know. Our resources are limited but we do not expect anything for free and are willing to work with people.
Please let me know if you can help, and if not, and you know someone who can then that is great too! Thank you all in advance for your help with this project, it truly means the world to us all!
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Support For Loving Boys Fighting a Life Threatening Disease!
About Us
- Joshua and Michael Garman
- We are wonderful little boys with Mitochondrial Disease Complex I. Two loving parents and our brothers pray for us and love us every day!
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My Story
Joshua was born in 2005 and developed normally until he was 4 months old, he was the perfect baby. In December, in his fathers arms, Joshua had his first seizure. We took him to the local hospital only to be sent home being told it was a childhood seizure and not to worry. The next day he had another one and we found ourselves spending 3 days at Cooper Hospital.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
The Morning After The Benefit
Benefit Night
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