Joshua's benefit night was a huge success! Our final profit was less then we had at his first fundraiser but with the economy in the shape it is, we were not surprised. This was our first dinner and it went off beautifully. Our hall wound up being small just because of the amount of donations we had!!! We had over 125 donations to raffle off. Everyone we have talked to had such a blast and hope we do another one!
I'm sorry we did not post sooner then this but our family lost both of my grandparents and we were close to them. Joshua also went in for surgery. None of you have gone unforgotten and we truly appreciate all the thoughts and prayers.
Our family cannot thank everyone enough for all their help and donations. Please keep an eye out on upcoming fundraisers/awareness events for our family on this page.
Please check below for pictures from the night!!!
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Support For Loving Boys Fighting a Life Threatening Disease!
About Us
- Joshua and Michael Garman
- We are wonderful little boys with Mitochondrial Disease Complex I. Two loving parents and our brothers pray for us and love us every day!
Joshua's Health/Family Update Page
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My Story
Joshua was born in 2005 and developed normally until he was 4 months old, he was the perfect baby. In December, in his fathers arms, Joshua had his first seizure. We took him to the local hospital only to be sent home being told it was a childhood seizure and not to worry. The next day he had another one and we found ourselves spending 3 days at Cooper Hospital.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
Blog Archive
The Morning After The Benefit
Benefit Night