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Dear Friends and Family,
As you know, Joshua and Michael have confirmed diagnosis of Mitochondrial Disease Complex I. What this means is that their bodies do not take the food they eat and air they breath and turn it into enough energy for them to sustain life properly. The lack of energy causes major body system dysfunction. We have had to take the boys all over the country seeking care. Insurance companies do not cover the cost of all their needs. The boys see doctors in almost every specialty and we spend many hours getting tests done and sitting in physicians offices. Now that Michael has a diagnosis also, he has to go to the all of the appointments with Joshua and we are in need of a double stroller to do this. It is a wheel chair that is like a double stoller but has more support then a normal double stroller. Walking long distances requires a lot of energy and would take much needed energy from their major organs such as their hearts and brains. This will also allow just one parent to be able to take them to and from appointmens rather then two people having to go to each visit like we do now. This is a life threatening disease and none of the children will ever outgrow this at any point in their lives. Pampered Chef will donate the proceeds from this show to help us purchase the stoller. All you have to do is Shop On-Line and have your order delivered right to your door. Pass this on to all of your friends and family. The more orders, the more help we get! If you or your friends book a show we will also get a larger donation. If you have any questions, please call my Pampered Chef Consultant, Angela, and she'll be happy to help with gift ideas, ordering or any questions you may have. Her number is 609-820-5977. If you would like more info on the disease you can go to www.umdf.org Thanks for all your help. The Garman Family
NOTE: Please place your order prior to my Show closing date: Sun, Dec 13, 2009
Your Pampered Chef® HostNicole Garmanhttp://www.pamperedchef.biz/angelamcooks
Orders Due:Sun, Dec 13, 2009
Host:Nicole Garman
Phone:(609) 914-0185
E-mail:garman_family@yahoo.com
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Support For Loving Boys Fighting a Life Threatening Disease!
About Us
- Joshua and Michael Garman
- We are wonderful little boys with Mitochondrial Disease Complex I. Two loving parents and our brothers pray for us and love us every day!
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My Story
Joshua was born in 2005 and developed normally until he was 4 months old, he was the perfect baby. In December, in his fathers arms, Joshua had his first seizure. We took him to the local hospital only to be sent home being told it was a childhood seizure and not to worry. The next day he had another one and we found ourselves spending 3 days at Cooper Hospital.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
Doctors had no answers by the time we left and Joshua had been placed on seizure medications. Our pediatrician at the time looked at his labs and had us get new ones ran. At his 6 month old check up he told me he thought that Joshua happened to have the same disease his son had. He sent Joshuas information to a specialist in this disorder and that June right before his 1st birthday we flew him to Atlanta, GA.
The doctors did a live muscle biopsy and ran many tests to see what was causing the seizures and the developemental delays. After 4 months of waiting, right before Halloween we got the news that Joshua has Mitochondrial Disease Complex I.
Mitochondrial Disease is a life-threatening disease with no cure or medication. Joshua's body does not produce enough energy for him to sustain life properly.
Joshua has had seizures, developmental delays, loss of speech when sick, hemiparesis, dysautonomia, and a comprimised immune system. He is a tough little cookie and tries to not allow these things to hold him back. Recently, Joshua's brother Michael, was diagnosed with Mitochondrial Disease also. He was diagnosed through a mouth swab done at St. Christopher's Hospital for Chrildren.
Michael is just as fiesty but has his own set of medical issues. For Michael, the disease affects his GI system and gives him significant sensory dysfunction. He was recently diagnosed with sleep apnea and underwent surgery to remove his tonsills and adenoids in hopes to fix the problem.
Doctors at St. Christopher's are now keeping an eye on George the newest addition to our family. Dispite all of their issues the boys are happy and overcome any obstacles that this disease places on them.
Looking at Joshua and Michael you would never know that there is something wrong with them. They lighten up the lives of those who know and love them. We could not immagine life without them.
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